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Linda Barrett

Linda Barrett

Linda Barrett

Starting Over~Breast Cancer & Me

AND NOW COME THE CRITICS–Br Ca Blog icon 1

We’re talking about actress Angelina Jolie again.With her stunning  announcement about the bi-lateral mastectomy she chose to endure because of the BRCA gene mutation in her family, she opened herself up to criticism. Unfortunately, she didn’t have to wait long before it came. Would it have been better had she remained silent?  I say no. A resounding NO.

Unless we’re living on the Starship Enterprise, surgical procedures leave behind their reminders. Ever have an appendectomy? The scar stays with you for life. Ever give birth by Ceasarian section or have a traditional hysterectomy? The scars remain across your abdomen forever; leaving you without sensation there.. And if you’ve had something more dramatic…say, an amputation of some kind…then yes, the more extensive collateral damage will stick around, too. It’s to be expected. Surgery is not for sissies. angelina jolie

In a very informative and well written article by Roni Rabin in the New York Times last Tuesday, (5/20/13), mention was made of breast surgeons’ concerns for the public. They feared that people might misinterpret Angelina Jolie’s surgical experience as their own.That it was a quick and easy procedure. Specifically, they were concerned about the nine weeks Ms. Jolie said it took her to complete her reconstructive surgeries. For most patients, for the average patient, it takes longer than that–upwards of a year–to say the procedures are over. And there are often complications which Ms. Jolie didn’t speak about. Hmm…if she didn’t have any, why would she bring it up?

I am an average breast cancer patient. I am not what is called a previvor as Ms. Jolie is. My last surgery is a year-and-a-half behind me. I still feel the effects, and they are common, of a bi-lateral mastectomy. The tightness across my chest, the random shooting pains, the aches from stretching, and the unhappiness with that hard circle of scar tissue around the failed implant. Yes, a failed implant. Been there, done that, too. I am not Angelina Jolie. But I don’t fault her for telling her personal story in the way it happened for her. I applaud her for sharing her experience with us.

Some might point a finger and say she had access to doctors extraordinaire. Well, I did, too–in the Houston Medical Center which is second to none in this country. Some might mention her access to research. I was blessed with many doctor friends who provided me with the best intel around.

The truth is that sometimes stuff happens. Unintended consequences. Collateral damage. Unforeseen circumstances. Call it what you will. Physicians try to be prepared for anything, But often, a patient’s body reacts in a way that even the very best of doctors don’t and can’t foresee.

I respect the surgeons’ concern for their patients as discussed in the article by Roni Rubin. I know their intentions are good. They wanted to warn the public that this procedure is not as easy as it might have appeared when Ms. Jolie revealed her story. I’d like to remind the good doctors, however, that they don’t have to worry. They are the ones in charge of their patients’ care. Educating patients is their job. Analyzing the risks and benefits for each person is their job. Explaining that these surgeries aren’t a “breeze” is their job.Discussing each viable option is their job. Helping patients make decisions is not the job of a celebrity.

In my humble–or not so humble–opinion, Angelina Jolie has saved lives. We won’t ever know how many. But you can’t argue with the number of women who are now asking questions about the BRCA1 and BRCA 2 gene mutations. The phone lines at FORCE, an organization specializing in hereditary breast and ovarian cancer, were ringing non-stop after Ms. Jolie’s announcement. Women were taking note about their own family’s pattern of cancer. About their own chances of finding a cancerous tumor in their breasts or on their ovaries. And they wanted more information.

Education about a painful subject is a slow process. Who wants to think about cancer? Who wants to admit they could be at risk? It’s a scary proposition. So the word goes out and is sometimes not heard. Not at first. But it will. The more people who speak up like Angelina Jolie did, the sooner knowledge will resonate. And then.,..just watch the hereditary cancer death rate drop.

Isn’t that the goal?

Facing Our Risk of Cancer Empowered or FORCE, is the only foundation in the country that focuses only on hereditary breast and ovarian FORCE Logocancer. They provide support for women at risk and for members of families in which the risk is present.  I’m proud to support its mission.

For more information, go to:  www.facingourrisk.org

I welcome all opinions! So if you’d like to continue this conversation, please leave a comment below.

BOOK NEWS!  I’m so excited!! Family Interrupted is now available IN PRINT as a trade paperback. Check it out at Amazon.   Here I am, holding the actual book in my hot little hands: 

The PRINT edition is here!

 

DON’T FORGET – you’ll be entered into this month’s drawing for a fabulous book package: LOVE ME SOME COWBOY — five novels by five different authors — AND a copy of my own book, Family Interrupted. All you have to do is: Leave A Comment! 

Love Me Some Cowboy - 5 book package 

 

As always, thanks so much for stopping by. I hope to see you for the next edition of Starting Over.

Linda

 

 

 

 

Starting Over ~ Breast Cancer and Me

OLYMPUS DIGITAL CAMERAI’m able to start over because cancer didn’t win. This enemy attacked not once, but twice. Yet I’m still here. So now it’s time to pick myself up and reclaim my normal activities–living, loving, writing, playing canasta and mah-jong and whatever else comes along. If I hide under the bed, I will have lost the battle despite being cancer free, and that is not acceptable.

It’s not that I’m stronger than anyone else. Really, I’m not. I’ve had wonderful support from family, friends, acquaintances and complete strangers. This breast cancer sisterhood is not isolated. It draws in brothers, sisters, husbands, co-workers, neighbors, everyone who knows you, everyone who cares about you and everyone who loves you. These are the allies. They were my allies. They shared their strength and offered help as well as hope.

In the end, however, women are the ones who sit in cotton gowns waiting for the mammogram report. It is a routine exam, but our hearts race as the technician walks over. When she smiles and says, “You’re free to go,” we know we’ve received another reprieve. Safe ’til next year.

Or not. In 2001, I found my first tumor myself six months after having had a mammogram. So my battle cry for you is: Vigilance. Self-exams. Mammograms. You’ve heard it before: early detection is the key to survival. The word’s out on television, news articles and in magazines. And yet…and yet…we too often hide.

Have you heard the joke about Cleopatra being Queen of “de-nial?” Well, too many of us qualify for that crown. Including me. I waited weeks before I could admit I was actually feeling something in my breast. Maybe it would go away tomorrow…or the next day…  Maybe I’d walked into a wall and bruised myself…and the bruise swelled a bit… Yeah, yeah, the imagination is sometimes NOT a wonderful thing. (But don’t say that to writers of fiction 🙂

During my last bout with the disease – detected through a mammogram – I can across a website called No Surrender. How’s that for a catchy, uplifting name? Turns out, I not only liked the supportive tone, but I appreciated the layman’s presentation of their Breast Cancer 101 section. They covered the gamut from interpreting a diagnosis to what to expect for all possible treatments. I would recommend this website as a starting point for anyone with questions about breast cancer.

Now, I have a question for you:  have you scheduled your mammogram for this year?  If you have any questions for me, please comment below and enter to win a copy of Family Interrupted.  Drawing at the end of the month. 

Wishing you all the best of health. Hope to see you next time for another edition of Starting Over!

Linda